Laura Henze Russell on Health, Chronic Disease & Hidden River Health Challenge, a project of Ocean River Institute
Wednesday, June 10, 2015
What We Do to Help Ourselves:
- engage people of all ages, stages, walks of life
- learn about genes and toxins, common causes of chronic diseases
- understand our own health information
- share what we learn with others
- take actions to help ourselves and others
- reach out to health care stakeholders, patient advocacy and other device illness groups, and innovators in patient care, health apps, precision medicine, biotech, digital health, big data
- work with functional/integrative/environmental MDs, biologic/holistic/mercury-safe dentists
- get appropriate, helpful tests (biocompatibility, allergy, genetics, heavy metals, toxins)
- separate ourselves from exposures - in our bodies, homes, schools, workplaces, yards
- get supportive treatment from knowledgeable professionals, monitor & curate our health
- build supportive communities so we share, give and receive support and help
- ask questions, advocate, communicate, innovate, thrive!
Tuesday, June 9, 2015
20 Hard Questions to FDA Science Forum 2015 (Click here)
Will FDA throw medical device illness patients a lifesaver, or continue to see, hear and speak no evil of dental and medical devices that - due to genetic variability in methylation, immunity, and detoxification pathways - are not "Right for Us?" We need #RightToKnow and #WrittenInformedConsent for everything installed in our bodies. We need all installed device #UDIs in #EMRs - not just in dental records, not seen by our doctors or #BigData.
It is time to recognize and respect #GeneticRights, and put patients' health first through #PrecisionDevices. We do not control our DNA, so we need strict controls and prior biocompatibility screening for all dental and medical device materials before they are installed. This is basic science and safety to protect children and adults as genetically unique snowflakes.